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Schedule for the Evaluation of Individual Quality of Life - Direct Weighting (SEIQoL-DW)
Availability
Please email the author for information about obtaining the instrument: Dr. Ciaran O'Boyle, cobyle@rcsi.ie
Classification
Supplemental: Parkinson's Disease (PD)
 
Exploratory: Amyotrophic Lateral Sclerosis (ALS)
 
 
Short Description of Instrument
The Schedule for the Evaluation of Individual Quality of Life (SEIQoL) was developed as an individualized measure that allows for the respondent to choose the most important domains to be evaluated. A Direct Weighting procedure, the SEIQoL-DW, was developed and has been deemed more suitable for routine clinical use. Most notably it places fewer demands on patients with reduced cognitive function. Respondents first identify 5 areas of life they consider most important, then rate how satisfied they currently are with each domain, and finally weight the relative importance of each domain. Respondents are required to have sufficient insight into the factors that determine their quality of life, have the ability to think abstractly and to make judgments based on information presented in diagrammatic form.
 
The SEIQoL-DW is a generic measure of QOL, although disease-specific (DR) versions have been created.
 
  
 
 
Comments/Special Instructions
Interviewer administered. A recently developed self-administered paper version did not perform well in a cardiac population.
 
 
Scoring and Psychometric Properties
Scoring: A global score from 0 to 100 (the SEIQoL index) is derived from the levels and weights, with zero indicating worst QoL and 100 the best QoL.
 
Psychometric Properties: A systematic review found the measure to have acceptable convergent and discriminant validity and reliability in people with a variety of non-PD neurological and other conditions. It did not show significant correlations with the UPDRS, Barthel Index or PDQ-39 Total score, but was associated with the Communication score of the PDQ-39. It has demonstrated excellent face validity with some patient groups and may result in a more heterogeneous definition of QOL.
 
 
Rationale/Justification
Strengths: It enables respondents to generate their own definition of QOL. Standardized measures may miss or insufficiently capture the most relevant and important QOL domains from an individual respondent's perspective.
 
Weaknesses: The measure is administered via interview with administration times estimated to be 5- 50 minutes. Time and resource constraints may limit its use in specific research contexts. In addition, individuals with cognitive limitations may find it challenging to complete the measure, possibly resulting in significant missing data. Neither version of the SEIQoL has been widely used in PD. In recent years, the DW version seems to be almost exclusively used.
 
 
References
Key References:
O'Boyle CA, McGee HM, Hickey A, Joyce CRB, Browne J, O'Malley K, Hiltbrunner B. (1993). The Schedule for the Evaluation of Individual Quality of Life (SEIQoL): Administration Manual. Dublin: Royal College of Surgeons in Ireland
 
Wettergren L, Kettis-Lindblad A, Sprangers M, Ring L. The use, feasibility and psychometric properties of an individualised quality-of-life instrument: a systematic review of the SEIQoL-DW. Qual Life Res. 2009 Aug;18(6):737-46.
 
Additional References:
Giovannetti AM, Pietrolongo E, Giordano A, Cimino V, Campanella A, Morone G, Fusco A, Lugaresi A, Confalonieri P, Patti F, Grasso MG, Ponzio M, Veronese S, Solari A. Individualized quality of life of severely affected multiple sclerosis patients: practicability and value in comparison with standard inventories. Qual Life Res. 2016 Nov;25(11):2755-2763.
 
Hickey AM, Bury G, O'Boyle CA, Bradley F, O'Kelly FD, Shannon W. A new short form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDS. BMJ. 1996 Jul 6;313(7048):29-33.
 
Lee MA, Walker RW, Hildreth AJ, Prentice WM. Individualized assessment of quality of life in idiopathic Parkinson's disease. Mov Disord. 2006 Nov;21(11):1929-34.
 
Kettis Å, Fagerlind H, FrÖdin JE, Glimelius B, Ring L. Quality of life assessments in clinical practice using either the EORTC-QLQ-C30 or the SEIOQL-DW: a randomized study. J Patient Rep Outcomes. 2021 Jul 14;5(1):58.
 
Martinez-Martin P, Jeukens-Visser M, Lyons KE, Rodriguez-Blazquez C, Selai C, Siderowf A, Welsh M, Poewe W, Rascol O, Sampaio C, Stebbins GT, Goetz CG, Schrag A. Health-related quality-of-life scales in Parkinson's disease: critique and recommendations. Mov Disord. 2011 Nov;26(13):2371-80.
 
McGee HM, O'Boyle CA, Hickey A, O'Malley K, Joyce CR. Assessing the quality of life of the individual: the SEIQoL with a healthy and a gastroenterology unit population. Psychol Med. 1991 Aug;21(3):749-59.
 
O'Boyle CA, McGee H, Hickey A, O'Malley K, Joyce CR. Individual quality of life in patients undergoing hip replacement. Lancet. 1992 May 2;339(8801):1088-91.
 
Smith HJ, Taylor R, Mitchell A. A comparison of four quality of life instruments in cardiac patients: SF-36, QLI, QLMI, and SEIQoL. Heart. 2000 Oct;84(4):390-4.
 
Takahashi K, Kamide N, Suzuki M, Fukuda M. Quality of life in people with Parkinson's disease: the relevance of social relationships and communication. J Phys Ther Sci. 2016 Jan;28(2):541-6.
 
Wettergren L, Hedlund Lindberg M, Kettis Å, Glimelius B, Ring L. Comparison of two instruments for measurement of quality of life in clinical practice--a qualitative study. BMC Med Res Methodol. 2014 Oct 9;14:115.
 
Document last updated August 2022